Today we introduce you to Catherine Flynn who, with Erica Hauser, will serve as a volunteer Sibling Support Lead and help us build our new Sibling Support Program. Both Catherine and Erica reached
Kelly and Annie Sorenson knew something was different about their son, Boston, shortly after he was born. He was small and having a hard time breathing. But even after he was discharged from the
Siblings of children with chronic medical conditions often grow up with more patience, compassion, and empathy than other children. But they're also at risk for anxiety, guilt, and isolation as well as other challenges.
Participating in research is a powerful way to help our community understand epilepsy surgery and its effects. We have three research studies for parents, children, and adults in our community. Please consider participating!
Planning for our 2022 family and professional conference is well under way! We'll announce the location soon and are excited to share that Chantell Ferrin, a professional event marketer for Visa, joins our team
In a few weeks, we'll announce the location and dates of our family and professional conference. In the meantime, we're excited to announce the event chair for next year's family conference: meet Erin
As part of our ongoing effort to make sure we address the needs of all the children we serve, we are honored to be part of the Youth Advisory Committee for HOBSCOTCH-Youth, a forthcoming
Does your child have an RNS, VNS, or DBS device implanted to treat drug-resistant epilepsy? Are you considering these devices for your child as a treatment after failing anti-epileptic medication? Or has your
Today we are excited to share the launch of our new program: Advocacy University. It's more than a webinar or new guide; this new school will take you on a deep dive to
Raising a child with complex medical needs can be expensive. You may have to pay for doctor’s visits, hospital stays, medications, and more. While you are struggling to care for your child, you