Justin and Erica Hauser’s youngest daughter had a right hemispherectomy at the age of 4 in an effort to stop or reduce her seizures. Erica and Justin turn to The Brain Recovery Project not just for research-based information, but for community as well.
Erica shares that “there is so much that goes into the planning for a surgery of this kind with your child’s medical team. However, there is not a medical professional out there that can really tell you what to expect and how to navigate life with your child after a hemispherectomy. The Brain Recovery Project was a much needed resource that came into our lives at just the right time to help our family when we had so many questions about how to navigate life after such a major surgery. From IEP planning, educational team training, questions about rehab therapies, adaptive equipment, suggestions on what to do if seizures return, the wealth of resources and knowledge shared at the pediatric conferences, the awareness of the latest technology available to assist our children and make their lives easier and much much more! But best of all is being a part of a community of other families that get it.”
In just a few weeks, the Hausers have raised $3,600 and counting to support our programs though their Facebook peer-to-peer campaign. By sharing their daughter’s powerful epilepsy surgery journey, they are giving back by being champions for the children we serve.
If you want to make a powerful impact for the children we serve, you can start your own fundraiser today.