Surround yourself
with people who get it

If your child has had epilepsy surgery, or may need it, this conference is for you. Learn from some of the world’s top neuro-professionals, educators, researchers, rehabilitation clinicians who will present rich sessions on issues related to pediatric epilepsy surgery.

Exhibitors will share their resources for our community and professional childcare is available so that kids have safe and supervised fun.

Join hundreds of families from around the world and enjoy two days of learning, fun, and fellowship against the backdrop of the spectacular Rocky Mountain range. 

Our conference theme this year is “Together We Climb.” It’s a reminder that even though sometimes obstacles seem insurmountable, we’re all in this together.

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#TogetherWeClimb

This year’s conference includes activities at the National Abilities Center

The National Abilities Center empowers individuals of all abilities by building self-esteem, confidence and lifetime skills through sport, recreation and educational programs. Participate in cycling, archery,  indoor climbing, giant swing, yard games (pickle ball, cornhole, badminton), and self-guided hiking. Children must be at least 4 + to participate in most activities.

Schedule

This is a tentative schedule. Times and rooms will be announced soon. Subject to change without notice.

View the Pediatric Epilepsy Surgery Conference schedule & directory.

General Information

 

  • Early bird rates extended through July 1, 2022:
    • adults $159
    • youth (10 – 17) $89
    • children (4 – 9) $69;
    • free for children 3 and under
  • Regular rates June 1, 2022, – July 1, 2022:
    • adults $179
    • youth (10 – 17) $109
    • children (4 – 09) $89
    • free for children 3 and under

Free registration for adults who had surgery in childhood. Registration includes several meals, access to the outdoor pool, water slide, and playground at the Silverado Mountain Sports Club and Spa, and activities at the National Abilities Center. Onsite professional childcare/kid camp available for an additional $25 per child from 8:30 a.m. – 4:30 p.m. Friday, July 22nd only.

California families: Admission to this conference may be paid by your regional center. Contact your service coordinator for more information.

This year’s event is at the beautiful Sheraton Park City located at 1895 Sidewinder Drive, Park City, Utah 84060. The conference room rate is $154 plus taxes and fees (destination fee has been waived.)

The Sheraton is approximately 35 miles from the Salt Lake City International Airport. There are several restaurants walking distance from the hotel, as well as an urgent care center right across the parking lot.

Deadline to book your room is June 29, 2022.

The $20 destination fee will be waived when you check in.

Professional child care services (“kid camp”) will be available for children of any ability.

  • Date: Friday, July 22nd only
  • Hours: 8:30 a.m. – 4:30 p.m.
  • Cost per child: $25
  • Location: Park City Sheraton Prospector ballroom (indoors)
  • You must pay for kid camp when you register for the event.
  • A waiver must be signed before your child participates in kid camp.
  • Childcare will be provided onsite and indoors.
  • Child care ratios:
    • Children with special needs – 1:2
    • Infants (0 – 2) – 1:2
    • Children (3 – 5) – 1:4
    • Children (6 – 12) – 1:6
    • Children (13-17) – 1:8

Due to COVID social distancing safety precautions, a maximum of 75 children can participate in kid camp this year.

Onsite Registration

Corporate Kids requires you and your child to participate in an onsite registration process prior to entering kid camp. Their safety program includes:

  • use of ID bracelets
  • secure sign-in and sign-out procedures
  • digital photo security system (digital photos of each child with their parents or guardians)
  • detailed review of each child’s dietary and medical needs

Activities

Children and teens will enjoy a full day of “kid-tested” activities that are age-appropriate, stimulating and, of course,
always fun!

The Hemispherectomy Foundation is offering some travel assistance on a first-come, first-served basis. To apply, send an email to CrisHall@HemiFoundation.org or contact him through Facebook Messenger. The deadline to apply is May 1st.

The Brain Recovery Project encourages scientific research programs because they contribute to advances in the study of functional outcomes after epilepsy surgery. Research teams approved by the organization’s Scientific Advisory Board will be conducting research at the conference. If you are interested in participating in or learning more about these projects, please check the box on your registration form. You will be contacted directly by the research project coordinators to arrange an appointment. Please do not contact researchers directly.

Here are some suggestions to make your trip less stressful:

  1. Make sure you have your current health insurance card/information in case of any medical emergencies. Review your policy regarding emergency care when traveling. Bring a hard copy of your child’s Seizure Action Plan.
  2. Place medications in your carry-on bag and make sure to bring an extra week’s worth to be safe.
  3. Pack sunscreen for time at the pool!
  4. The weather in Park City can reach the high 80s/low 90s during the day and drop down to the 50s in the evening. Bring warm weather clothes as well as a light sweater or sweatshirt for the evenings. For our day at the National Ability Center make sure you wear comfortable shoes as the venue is large with lots of activities for you and your family.

Closest Airport

Salt Lake City International Airport is the closest major airport to Park City. Direct flights to Salt Lake City are available from many cities in the U.S. and Mexico. The airport is approximately a 40-minute drive from Park City.

Local Transportation

  • The hotel has a free shuttle to take you into Park City
  • There is no free shuttle from the hotel to the airport
  • Uber/Taxi available

Closest Urgent Care – Park City Instacare

Closest Children’s Hospital – Primary Children’s Hospital

Grab a table at our exhibit hall and share information about your resources and products with our families. Download our info sheet to learn more: Exhibitor Information Sheet

Prior conferences have included sessions and workshops on a wide range of topics. This year’s conference will be more focused on having fun. One day of conference sessions will be replaced by a day at the National Abilities Center for our families.

You can view prior conference sessions our our YouTube channel here.

The Brain Recovery Project reserves the right to cancel all or any part of this event if there is insufficient registration or for other reasons. Neither The Brain Recovery Project nor its grantors or sponsors is responsible for cancellation charges assessed by the airlines, travel agencies, hotel, or other losses incurred due to the cancellation of this conference. You will be reimbursed for your ticket(s), less processing fees, in the event of cancellation.

Written cancellations, requests for refunds (less Eventbrite administrative fees), and/or changes will be accepted until July 1, 2022.

All information listed on this website is subject to change.

The Brain Recovery Project wishes to take steps to ensure that no individual with a disability is excluded, denied services, segregated or otherwise treated differently than other individuals due to the lack of auxiliary aids and services. If you require any of the auxiliary aids or services identified in the Americans with Disabilities Act to attend any program, contact Erin Williamson, Event Chair, at conference@brainrecoveryproject.org.

In 2009, the Hemispherectomy Foundation held its first family conference at Johns Hopkins Hospital in Baltimore, Maryland. The Brain Recovery Project was tasked with organizing the 2011 conference in Los Angeles, and in 2014 The Brain Recovery Project organized and co-hosted the conference with the Hemispherectomy Foundation. In 2015, the Hemispherectomy Foundation announced that it would no longer host the events, and The Brain Recovery Project assumed the position of sole organizer and host. Through 2016, the event addressed only hemispherectomy procedures and their functional impact. Starting in 2017, the conference – as well as the organization – expanded its reach to all epilepsy surgeries.

TERMS AND CONDITIONS: Your personal data will be collected to manage your registration and participation in connection with this conference and will be shared with The Brain Recovery Project and those who are coordinating the logistics for the conference.


COVID19: In light of ongoing concerns regarding COVID and other communicable health risks, we will implement health and safety protocols appropriate to the public health circumstances existing at the time of the Conference. The Brain Recovery Project will exercise reasonable efforts to utilize protocols that will comply with federal, state, and local public health laws and private business policies in effect at the time of the conference.


CODE OF CONDUCT: An inherent risk of exposure to COVID-19 exists in any public place where people are present. COVID-19 is an extremely contagious disease that can lead to severe illness and death. Participation in conference events and activities carries some risk, and by attending, attendees assume responsibility for their own well-being. All attendees must follow posted instructions while participating in conference events and activities. Failure to follow all protocols in effect and required by The Brain Recovery Project, the venue provider, and governing authorities during the conference may result in registration cancellation without refund.


ASSUMPTION OF RISK: By registering for the conference, I hereby assume all risks associated with, resulting from, or arising in connection with, participation, in any capacity, in the conference or any conference-related activities, including, without limitation, all risks of theft, loss, harm, damage, illness or sickness (including those caused by known or unknown infectious or communicable disease such as COVID, H1N1, or other illness or sickness caused by bacteria, fungi, microorganisms or viruses), or injury to the person (including death) or property damage, whether caused by negligence, intentional act, accident, act of God, or otherwise.


WAIVER, RELEASE, AND INDEMNIFICATION: As a condition of my participation in the conference, I agree to hold harmless, defend and indemnify The Brain Recovery Project, its directors, officers, employees, volunteers, licensees, cooperating entities, agencies, their representatives, heirs, executors, administrators, successors and assigns (the “Protected Parties”) from any and all claims of mine, my spouse, family members, or others arising from my injury or loss due to my participation in the conference, including those arising from the inherent risks of attending the conference or the negligence of the Protected Parties to the greatest extent allowed by law.


COVID DISCLAIMER: I agree to not travel to the event if I am not feeling well. I agree that if I am not feeling well onsite, I will immediately return to my room and contact both the hotel front desk and The Brain Recovery Project to notify them. I also agree to follow all federal, state, and local health and safety laws while at the event.


ACKNOWLEDGEMENT OF UNDERSTANDING/SEVERABILITY/JURISDICTION: I further acknowledge that by completing the registration for the conference I have read this liability waiver, assumption of risk and indemnification agreement and fully understand its terms. I freely and knowingly assume the risk and waive my rights concerning liability as described above and, I am agreeing to a complete and unconditional release of all liability. If any portion of this agreement is held invalid, it is agreed that the balance shall, notwithstanding, continue in full legal force and effect.


By registering for this conference, all participants, including speakers and attendees, agree to be photographed, filmed, recorded, or videotaped by a The Brain Recovery Project representative and other business partners working with the organization. Participation in or attendance at this meeting constitutes the voluntary consent of the participant or attendee to: (a) be photographed, filmed, recorded, or videotaped by a The Brain Recovery Project representative and other business partners working with the organization and (b) the reproduction, distribution, and use of all such photographs, digital images, films, voices, recordings, actions, names, and likenesses for any lawful purpose, including for use in publications, brochures, advertisements, promotional and marketing materials, and all other media venues including the World Wide Web, all without further notice or compensation to participant or attendee. I acknowledge that I may be photographed, filmed, or recorded during the meeting and that I have appropriate permission to share any information that I disclose during the meeting. I hereby release to The Brain Recovery Project and other business partners working with The Brain Recovery Project all proprietary rights and copyrights in all such photographs, digital images, voices, recordings, actions, films, and likenesses (including negatives, positives, and prints) which shall be and remain the property of The Brain Recovery Project and other business partners working with The Brain Recovery Project. I understand that these materials may be used in various publications, public affairs releases, recruitment materials, or for other related endeavors. These materials may also appear on The Brain Recovery Project’s and other business partners’ working with The Brain Recovery Project websites and other public social media sites. I further represent and warrant that I have permission to display and distribute any content I include in my presentation (e.g., slides, videos, photos) and grant The Brain Recovery Project and other business partners working with The Brain Recovery Project a non-exclusive license to use, copy, redistribute, publish, and display the content for non-commercial purposes consistent with The Brain Recovery Project’s mission. I expressly release The Brain Recovery Project, and other business partners working with The Brain Recovery Project, its/their directors, officers, employees, agents, and volunteers from any and all claims, including copyright, right of publicity, and right of privacy, arising out of any reproduction, broadcast, distribution, publication, or promotion of this meeting or the materials described above.

  • Treat one another with respect, consideration, and dignity regardless of gender, gender identity and expression, sexual orientation, marital or parental status, age, immigration status, disability, neurodiverse status, physical appearance, body size, race, ethnicity, nationality, religious affiliation, socioeconomic background, educational background, career stage, political affiliation, or military service.
  • Comments or behaviors that may reasonably be assumed to have the effect of creating, contributing to, or maintaining an environment that is hostile toward or damaging to a person or group are prohibited, no matter whether they are made directly (e.g., in person or directly online) or indirectly (e.g., via social media).

Our event planning committee is led by Erin Williamson, Event Chair, and Chantell Ferrin, Attendee Experience Lead. If you don’t find the information you’re looking for on this website, please email our team at conference@brainrecoveryproject.org or call us at 833-675-3335 extension 7.

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