Many families struggling with financial issues find it difficult to obtain a surgical evaluation at a hospital far from home. Airfare, ground transportation, and lodging costs can add up when your child needs several days of video EEG monitoring, imaging, and other tests.
This is why Dreams for Danny was created – to help families afford travel and lodging associated with an epilepsy surgery consultation. Funded in part by the parents of Danny Abel, a young boy who needed subtotal hemispherectomy to stop his seizures, this new program provides up to $1,000 in approved travel funds for scholarship awardees.
Our epilepsy journey began with infantile spasms when Danny was 10 months old. Uncertainty clouded our family’s future, and we grieved the childhood we thought Danny would have. After a relatively consistent break from seizures the maintenance medicine no longer protected Danny’s brain. Myoclonic seizures were occurring daily, and we started pre-surgical testing.
As seizures continued the once crazy idea of surgery didn’t seem so far-fetched. Tests confirmed Danny was a good surgical candidate, and we pursued a second opinion with a well-known surgery focused neurologist. We were given a real reason to hope again for Danny’s future. We handed over our 3 year old son to the surgery team on May 12, 2016, for a subtotal left hemispherectomy. Danny has been doing well ever since, and it’s been an absolute joy to witness small miracles constantly unfolding.
The Dreams for Danny travel scholarship program was created to help families afford travel and lodging to obtain an epilepsy surgery consultation. This necessary but real financial hurdle stops too many families from finding out if their children have a chance of benefitting from surgery. We want other families to also experience renewed dreams for their children that epilepsy brain surgery can give to them. – Lauren Marx Abel
THE DREAMS FOR DANNY SURGICAL EVALUATION TRAVEL SCHOLARSHIP IS SPONSORED IN PART BY
Give a child the gift of hope
We’re looking for donors and sponsors to support this important initiative. Contact our executive director, Monika Jones, at email@example.com or 833-675-3335 or donate now.