Our epilepsy journey began with infantile spasms when Danny was 10 months old. Uncertainty clouded our family’s future, and we grieved the childhood we thought Danny would have. After a relatively consistent break from seizures the maintenance medicine no longer protected Danny’s brain. Myoclonic seizures were occurring daily, and we started pre-surgical testing.
As seizures continued the once crazy idea of surgery didn’t seem so far-fetched. Tests confirmed Danny was a good surgical candidate, and we pursued a second opinion with a well-known surgery focused neurologist. We were given a real reason to hope again for Danny’s future. We handed over our 3 year old son to the surgery team on May 12, 2016, for a subtotal left hemispherectomy. Danny has been doing well ever since, and it’s been an absolute joy to witness small miracles constantly unfolding.
The Dreams for Danny travel scholarship program was created to help families afford travel and lodging to obtain an epilepsy surgery consultation. This necessary but real financial hurdle stops too many families from finding out if their children have a chance of benefitting from surgery. We want other families to also experience renewed dreams for their children that epilepsy brain surgery can give to them. – Lauren Marx Abel