Information and resources to help you navigate the journey.
Informed parents and caregivers make better health care decisions for their child. Educators teach at their best when they understand a child’s strengths and needs. Clinicians counsel families better when they have knowledge translation summaries at their fingertips. As a trusted provider of evidence-based information, our website, guides, and webinars are reliable sources for anyone on your child’s epilepsy surgery journey.
Peer support when you just need someone to talk to.
Peer supporters provide emotional or informational support because they’ve been there. Whether your child has just been diagnosed with drug-resistant seizures, is in the process of surgical evaluation, recovering from surgery, or experiencing learning challenges in school, our peer supporters can help.
Financial assistance when you need a helping hand.
Your child’s epilepsy surgery journey can be financially challenging for your family. We’re here to help.
- Dreams for Danny: Surgical Evaluation Travel Scholarship – up to $1,000 in reimbursed costs if you need to travel more than 50 miles to a level 4 hospital for an epilepsy surgery evaluation for your child.
- COVID19 Emergency Relief Fund – If you’re experiencing immediate and significant financial hardship because of the pandemic we can provide $250 in emergency relief now.
Surround yourself with people who get it.
Held every two years, our national family and professional conferences are jam-packed with information sessions and fun! Listen to some of the world’s top neuroprofessionals discuss meaningful topics that are important to you while a professional child care firm takes care of your children. View prior conference sessions on our You Tube channel.
Your child’s journey matters.
The Global Pediatric Epilepsy Surgery Registry gives families a platform to share their child’s epilepsy surgery journey in a structured, meaningful way. The registry benefits our community by creating a ‘research-ready’ collection of data to report back to other parents, neurosurgeons, neurologists, and other aligned professionals like physical therapists and educators who care about the benefits and challenges after epilepsy surgery.
Share your story, fundraise, volunteer.
We can’t do this alone. There are many ways you can help us serve our community of incredible families.
