The Brain Recovery Project is pleased to announce the appointment of Matt Flesch as Chair of our Board of Directors. Flesch is Vice President of Communications and Patient Advocacy at Horizon Therapeutics. He will
Some children in our community are still in the fight. Children like Owen who was diagnosed with focal epilepsy and infantile spasms at only eight-weeks old. By April 2021, Owen had failed steroid
The Flynn family, Christmas Day 2021 Guest Blog Post: Elizabeth Flynn "About six years ago on a family vacation to Park City, my three-year-old sister Margaret had her first seizure. I can
Cecile Dame and her son earlier this week "I still remember the feeling of entering an endless night after learning the diagnosis of infantile spasms for our son, followed by the despair
By: Brooke (13) and Jill (15) Hauser Our sister Katie’s story: For the past 8 years of my life, my little sister Katie has definitely made the most impact. When she was 4 months
"The sibling relationship is unique in that it lasts the longest of all human relationships."* This Epilepsy Awareness Month, we're sharing facts about drug-resistant epilepsy and surgery on our social media channels.
Today we introduce you to Catherine Flynn who, with Erica Hauser, will serve as a volunteer Sibling Support Lead and help us build our new Sibling Support Program. Both Catherine and Erica reached
Kelly and Annie Sorenson knew something was different about their son, Boston, shortly after he was born. He was small and having a hard time breathing. But even after he was discharged from the
Siblings of children with chronic medical conditions often grow up with more patience, compassion, and empathy than other children. But they're also at risk for anxiety, guilt, and isolation as well as other challenges.
Participating in research is a powerful way to help our community understand epilepsy surgery and its effects. We have three research studies for parents, children, and adults in our community. Please consider participating!