How you helped Owen’s parents get answers
Some children in our community are still in the fight. Children like Owen who was diagnosed with focal epilepsy and infantile spasms at only eight-weeks old. By April 2021, Owen had failed steroid
“All I wished for was for someone to talk to”
The Flynn family, Christmas Day 2021 Guest Blog Post: Elizabeth Flynn "About six years ago on a family vacation to Park City, my three-year-old sister Margaret had her first seizure. I can
“Why peer support is important to me”
Cecile Dame and her son earlier this week "I still remember the feeling of entering an endless night after learning the diagnosis of infantile spasms for our son, followed by the despair
Sibling reflections: two sisters share their journey
By: Brooke (13) and Jill (15) Hauser Our sister Katie’s story: For the past 8 years of my life, my little sister Katie has definitely made the most impact. When she was 4 months
Call for volunteers – sibling support initiative
"The sibling relationship is unique in that it lasts the longest of all human relationships."* This Epilepsy Awareness Month, we're sharing facts about drug-resistant epilepsy and surgery on our social media channels.
Meet Catherine Flynn, who’s helping lead our sibling support initiative
Today we introduce you to Catherine Flynn who, with Erica Hauser, will serve as a volunteer Sibling Support Lead and help us build our new Sibling Support Program. Both Catherine and Erica reached
Meet Boston: seizure-free and thriving after hemispherectomy
Kelly and Annie Sorenson knew something was different about their son, Boston, shortly after he was born. He was small and having a hard time breathing. But even after he was discharged from the
Announcing our new sibling support initiative
Siblings of children with chronic medical conditions often grow up with more patience, compassion, and empathy than other children. But they're also at risk for anxiety, guilt, and isolation as well as other challenges.
New! Participate in research and help our community
Participating in research is a powerful way to help our community understand epilepsy surgery and its effects. We have three research studies for parents, children, and adults in our community. Please consider participating!
Meet Chantell Ferrin, our family conference Attendee Experience Lead
Planning for our 2022 family and professional conference is well under way! We'll announce the location soon and are excited to share that Chantell Ferrin, a professional event marketer for Visa, joins our team