“All I wished for was for someone to talk to”
The Flynn family, Christmas Day 2021 Guest Blog Post: Elizabeth Flynn "About six years ago on a family vacation to Park City, my three-year-old sister Margaret had her first seizure. I can
“Why peer support is important to me”
Cecile Dame and her son earlier this week "I still remember the feeling of entering an endless night after learning the diagnosis of infantile spasms for our son, followed by the despair
Call for volunteers – sibling support initiative
"The sibling relationship is unique in that it lasts the longest of all human relationships."* This Epilepsy Awareness Month, we're sharing facts about drug-resistant epilepsy and surgery on our social media channels.
Introducing our new peer support program
Talk with a parent who's been there. We are thrilled to launch our new Peer Support Program just in time for Epilepsy Awareness Month. If your child is anywhere on the epilepsy
Transition to Employment: Adult Agencies You Should Know About!
Last week, we discussed National Disability Employment Awareness Month and provided Five Tips for Success for your teen or young adult who had brain surgery for epilepsy. This week, let's consider what happens
National Disability Employment Awareness Month: Five Tips for Success
October is National Disability Employment Awareness Month (NDEAM). This national campaign aims to raise awareness about disability employment issues and celebrate the contributions of employees with disabilities. This year’s theme is “America’s Recovery:
Our best tips for a 504 plan after epilepsy surgery
Returning to school after epilepsy surgery can be a challenge, especially because of the diverse and various needs the child may have. Even if the student does not qualify for an IDEA, they
Meet Catherine Flynn, who’s helping lead our sibling support initiative
Today we introduce you to Catherine Flynn who, with Erica Hauser, will serve as a volunteer Sibling Support Lead and help us build our new Sibling Support Program. Both Catherine and Erica reached
Announcing our new sibling support initiative
Siblings of children with chronic medical conditions often grow up with more patience, compassion, and empathy than other children. But they're also at risk for anxiety, guilt, and isolation as well as other challenges.
Meet Chantell Ferrin, our family conference Attendee Experience Lead
Planning for our 2022 family and professional conference is well under way! We'll announce the location soon and are excited to share that Chantell Ferrin, a professional event marketer for Visa, joins our team