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Home2022-05-19T14:04:37-07:00

BOOK YOU ROOM TODAY!

Pediatric Epilepsy Surgery Conference.

Surround yourself with people who get it at this can’t-miss event! If your child has had epilepsy surgery, or may need it, this conference is for you. Learn from some of the world’s top neuro-professionals, educators, researchers, rehabilitation clinicians who will present rich sessions on issues related to pediatric epilepsy surgery. Registration includes a full day at the National Abilities Center for your entire family!

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BE A CHAMPION FOR OUR CHILDREN

Give today.

Your generous donation will fund life-changing resources for children with drug-resistant seizures. Help us raise awareness about pediatric epilepsy surgery as a treatment for seizures, support our impactful programs, and inspire and fund critical research to understand – and improve – outcomes after surgery.

MAKE A DIFFERENCE

Participate in research.

The Global Pediatric Epilepsy Surgery registry is a research project that allows families to share their experiences with and without epilepsy surgery in childhood by completing a series of surveys. The data collected will be used to answer some of the most important questions about pediatric epilepsy surgery, such as:

  • What can a child do over time after epilepsy surgery?
  • What post-operative therapies and interventions are useful?
  • What are some unusual symptoms or medical issues that happen after epilepsy surgery that parents report but doctors may be unaware of?
  • What are the issues that concern parents?
  • What is the impact of epilepsy surgery on a child’s quality of life?
  • What surgical techniques work best and for whom?
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UNDERSTAND

The risks of drug-resistant seizures

Drug-resistant seizures can have serious consequences, especially if they begin in infancy. Intractable epilepsy can cause development to freeze in time or regress significantly. Epilepsy surgery is no longer considered a last resort for children with medication-resistant seizures, but it’s important to understand effects of surgery and outcomes. We help you understand the risks and benefits of various neurosurgeries to stop seizures so that you can make an informed decision about whether epilepsy surgery is right for your child.

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Children diagnosed with epilepsy in the U.S. each year
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Percentage of children with epilepsy whose seizures are drug-resistant

UNDERSTAND

The risks of drug-resistant seizures

Drug-resistant seizures can be catastrophic to a child’s development, especially if they begin in infancy. Intractable epilepsy can cause development to freeze in time or regress significantly. Epilepsy surgery is no longer considered a last resort for children with refractory epilepsy, but there are risks associated with brain surgery, some which can be significant. We help you understand the risks and benefits of various brain surgeries to stop seizures so that you can make an informed decision about whether brain surgery is right for your child.

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Children diagnosed with epilepsy in the U.S. each year
0%
Children with epilepsy whose seizures are drug-resistant

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Our Latest Articles

What we learned in our Power Hour session about vision after epilepsy surgery

By |June 1st, 2022|Categories: Resources|Tags: , |

Recently we hosted a Power Hour on Vision After Epilepsy Surgery. Dr. Linda Lawrence, member of our scientific advisory board and a pediatric ophthalmologist who is an expert in brain-based visual impairment as well as

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