BE A CHAMPION FOR OUR CHILDREN
Give today.
Your generous donation will fund life-changing resources for children with drug-resistant seizures. Help us raise awareness about pediatric epilepsy surgery as a treatment for seizures, support our impactful programs, and inspire and fund critical research to understand – and improve – outcomes after surgery.
MAKE A DIFFERENCE
Participate in research.
The Global Pediatric Epilepsy Surgery registry is a research project that allows families to share their experiences with and without epilepsy surgery in childhood by completing a series of surveys. The data collected will be used to answer some of the most important questions about pediatric epilepsy surgery, such as:
- What can a child do over time after epilepsy surgery?
- What post-operative therapies and interventions are useful?
- What are some unusual symptoms or medical issues that happen after epilepsy surgery that parents report but doctors may be unaware of?
- What are the issues that concern parents?
- What is the impact of epilepsy surgery on a child’s quality of life?
- What surgical techniques work best and for whom?
UNDERSTAND
The risks of drug-resistant seizures
Drug-resistant seizures can have serious consequences, especially if they begin in infancy. Intractable epilepsy can cause development to freeze in time or regress significantly. Epilepsy surgery is no longer considered a last resort for children with medication-resistant seizures, but it’s important to understand effects of surgery and outcomes. We help you understand the risks and benefits of various neurosurgeries to stop seizures so that you can make an informed decision about whether epilepsy surgery is right for your child.
UNDERSTAND
The risks of drug-resistant seizures
Drug-resistant seizures can be catastrophic to a child’s development, especially if they begin in infancy. Intractable epilepsy can cause development to freeze in time or regress significantly. Epilepsy surgery is no longer considered a last resort for children with refractory epilepsy, but there are risks associated with brain surgery, some which can be significant. We help you understand the risks and benefits of various brain surgeries to stop seizures so that you can make an informed decision about whether brain surgery is right for your child.
Advocacy and Collaboration
We understand that there are limits to what we can accomplish on our own. That’s why we collaborate with high impact organizations who help us serve our community.
Our Latest Articles
Announcing our 2022 – 2023 board of directors
The Brain Recovery Project is pleased to announce the appointment of Matt Flesch as Chair of our Board of Directors. Flesch is Vice President of Communications and Patient Advocacy at Horizon Therapeutics. He will
