Our downloadable pamphlets and guides are evidence-based knowledge translation summaries that help you inform your patient’s parents, guardians, and caregivers.
BRAIN SURGERY TO STOP INFANTILE SPASMS
This guide introduces your patient’s parents to the concept of stopping infantile spasms with brain surgery. Written by parents, for parents, it makes clear that infantile spasms can have catastrophic consequences if they are not stopped early.
WHEN ARE SEIZURES CONSIDERED DRUG RESISTANT?
Drug resistant seizures are defined as failure of two appropriate and tolerated anti-epileptic drugs. This guide breaks down the International League Against Epilepsy’s definition of drug resistance.
VISION AFTER HEMISHERECTOMY, TPO DISCONNECTION, AND OCCIPITAL LOBECTOMY
This guide summarizes the various visual impairments a child will have after hemispherectomy, TPO disconnection, and occipital lobectomy, and how they can affect a child’s daily living, functional mobility, and access to the educational curriculum in school.
HYDROCEPHALUS AFTER HEMISPHERECTOMY AND OTHER BRAIN SURGERIES TO STOP SEIZURES
Hydrocephalus occurs in approximately 23% of children after hemispherectomy and carries the risk across a lifespan. This fact sheet summarizes the symptoms of hydrocephalus, imaging challenges, and other data from published research.
ASSISTIVE TECHNOLOGY ASSESSMENTS AFTER EPILEPSY SURGERY
After epilepsy surgery, children may have difficulties performing some activities of daily living on their own or even with assistance, and assistive technologies can minimize the effects of the child’s disabilities, making it easier for the child to accomplish various tasks.
VISION EVALUATIONS AFTER EPILEPSY SURGERY
A complete annual evaluation from a neuro-ophthalmologist is beneficial to children after hemispherectomy, TPO disconnection, and occipital lobectomy. Early diagnosis, coping strategies, and patient rehabilitation are critical after these surgeries.
STRATEGIES FOR CORTICAL AUDITORY IMPAIRMENT AFTER HEMISPHERECTOMY
There are many management options to address Central Auditory Processing Disorder. These can include therapeutic and environment interventions and compensatory strategies to help the child to be as successful as possible.
HELPFUL EDUCATIONAL STRATEGIES FOR CHILDREN WITH HOMONYMOUS HEMIANOPSIA
A child with homonymous hemianopsia should learn as early as possible to advocate for themselves. This guide provides key strategies for one of the most important social, emotional, and educational skills we can teach, self advocacy.
PARAPROFESSIONALS AND AIDES AFTER EPILEPSY SURGERY
Children after epilepsy surgery often require a 1:1 aide to help them navigate their school’s physical campus safely and sometimes to access the education curriculum. This brief info sheet describes how a dedicated aide can help a child after surgery.
Rasmussen’s Encephalitis – coming soon
Cortical Dysplasia – coming soon
Stroke – coming soon
Hemispherectomy – coming soon
Brain Surgeries To Stop Seizures – coming soon
Pamphlets and guides will be available in English, Spanish, Korean, Mandarin, and other languages. Do you have any suggestions? Email us at firstname.lastname@example.org.