The Brain Recovery Project was formed in May of 2011 by Brad and Monika Jones. Brad and Monika’s son Henry has undergone three epilepsy surgeries – modified lateral hemispherotomy, revision, and then anatomical hemispherectomy – for intractable epilepsy caused by total, syndromic hemimegalencephaly.
After his hemispherotomy at the age of three months old, Brad and Monika grew increasingly frustrated by the lack of information in the medical and therapy community about how to best rehabilitate their child. Would he learn to walk? Would he talk? How would they get him to reach his full potential? When no clear answers were provided, they decided to form this non-profit organization. The Brain Recovery Project received its non-profit status from the Internal Revenue Service in August of 2011. We are a 501(c)(3) not-for-profit corporation.
The Jones family in 2009