After her first son, Henry, was born with total hemimegalencephaly and required a modified lateral hemispherotomy, then revision, then a third surgery to convert to a true anatomical hemispherectomy, she and her husband Brad Jones founded The Brain Recovery Project to initiate and fund research to better understand neurorehabilitation after hemispherectomy surgery.
An active member of several social media communities where families of children with intractable epilepsy, she quickly learned how underserved children are after having brain surgery to stop seizures. She served as the principal investigator for the R13 grant from the National Institutes of Health to support the 2014 scientific symposium on brain plasticity, hemispheric specialization, and neuro-rehabilitation after cerebral hemispherectom. At her behest, the board of directors in 2016 agreed to expand the organization’s reach to include all resective and disconnective procedures.
For most of her professional career she was a litigator representing corporations in various matters, including lawsuits brought by employees, insurance coverage disputes, trademark infringement, or other contractual disputes. She has served as assistant general counsel of Luminent, Inc., an optical component manufacturer, general counsel of Brown and Riding Insurance Services, a national wholesale insurance broker, and then as a vice president of Brown and Riding’s casualty division.
She is a graduate University of California at Los Angeles and received her juris doctorate from the University of Southern California. Although no longer practicing law, Monika is an active member of the Council of Parent and Attorney Advocates and is a founding board member of Watkins VITAL Care Program, an innovative new program that offers an educational environment for adults with moderate-to-severe autism who have aged out of the school system. She has served on the board of Portals, one of the oldest and largest mental health organizations in Los Angeles which offers mental health services in Central and South Los Angeles.
In 2003, her first son, Bennett, was born. He had suffered a massive stroke in utero and went on to have a hemispherectomy at age 2. As the parent of a child with cerebral palsy, Audrey shifted her career to that of an educational advocate and caregiver. In 2010, she created Camp Bennett, a constraint induced movement therapy program for pediatric stroke survivors, which operated in the San Francisco Bay Area until 2012.
Audrey has been recognized on the state and national level for her advocacy in the area of disability rights and empowering parents of children with special needs, as well as her commitment to inclusion and ability awareness. She was Support for Families 2010 Honoree, where she received an award for her community service work through Camp Bennett. In addition, she received a Certificate of Recognition from the California State Assemblyman Tom Ammiano in recognition to her “unwavering commitment to… the children of our underserved communities.”.
She and her husband, Russ, have 2 sons: Bennett (11) and Sammy (9) and they live in San Francisco.
Audrey spent the first 15 years of her career as a photojournalist, author and teacher. Her photographs have appeared in newspapers and magazines worldwide, including The New York Times, USA Today, Time and Newsweek. Her two books, ‘Picture the Girl’ and ‘Unveiled’ use images and interviews to provide an intimate view of the lives of teenage girls and married couples, respectively. Audrey received a B.A. in journalism from San Francisco State University. She also taught photography at a private high school for 13 years.
Prior to The Brain Recovery Project, Nicole spent seven years at Citizen Schools, a national non-profit dedicated to closing the opportunity gap for low-income kids. Nicole served as the National Director of Growth Strategy & Development and National Director of Corporate Partnerships. Before that, Nicole worked at United Way of America, the national leadership organization for the United Way network, as a Director of Community Impact, and she also spent 3 years with Ashoka, a global organization focused on identifying and investing in leading social entrepreneurs.
Nicole and her husband, Jonathan, have two sons, Declan and Ronan. Ronan, her youngest, underwent a functional hemispherectomy at the age of 10 months at the Children’s Hospital of Philadelphia.