Meeting other parents whose children have had epilepsy surgery is often the first thing parents want to do when their child is diagnosed with drug-resistant epilepsy. There are several ways to connect with other families:


Pediatric Epilepsy Surgery Support – A closed Facebook group created and moderated by parents.

The Hemispherectomy Foundation – An open Facebook group moderated by The Hemispherectomy Foundation.

Hemimegalencephaly Family Support Network – A closed Facebook group created and moderated by page administrators.


We host conferences where families can learn from experts and meet other families.

Email Us

Email us at and we will connect you with a family in your area with the same/similar diagnosis whose child has had epilepsy surgery.

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