Learn from experts in the fields of neurology, neurosurgery, and other aligned disciplines by viewing sessions from various conferences we have hosted, co-hosted, or helped organize. Our You Tube channel has most sessions from our family and professional conferences.
Building Your Child’s IEP – A Step-by-Step Guide for Beginners
Did you know that the Individuals with Disabilities Education Act outlines the steps to building your child’s IEP? Before you walk into an Individual Education Plan (IEP) meeting, you MUST understand the steps! Monika Jones, JD, our CEO and member of the board of directors of the Council of Parent Attorney Advocates, shares how to build your child’s IEP at the 2018 meeting of the National Organization of Disorders of the Corpus Callosum.
The Reading Brain: Neuroscience and Implications for Assessment after Hemispherectomy and Other Epilepsy Surgeries
Why are the sounds of language more important than identifying letters when a child is learning to read? What is our knowledge base about struggling readers, including hemispherectomy? What reading assessments are appropriate after epilepsy surgery? Joanna A. Christodoulou, EdD, MIT researcher, discusses how we learn to read and the impact of hemispherectomy and other resection surgeries at the 2017 Pediatric Epilepsy Surgery Conference and Family Reunion.
Differences In Hemispherectomy Procedures
Dr. Gary Mathern discusses differences in hemispherectomy procedures, types of procedures and seizure recurrence, and differences in underlying conditions (etiologies) at the 2011 International Hemispherectomy Conference and Family Reunion sponsored by the Hemispherectomy Foundation.
When Seizures Return After Hemispherectomy: Reliability Of EEGs
Dr. Ki Hyeong Lee Medical Director of the Comprehensive Pediatric Epilepsy Center at the Florida Hospital for Children in Orlando, Florida, discusses the challenges of reading EEGs after hemispherectomy surgery at the 2017 Pediatric Epilepsy Surgery Conference and Family Reunion.
Hydrocephalus After Hemispherectomy and Other Resective Surgeries
Dr. Aria Fallah, a fellowship trained pediatric neurosurgeon who practices at UCLA Mattel Children’s Hospital and Ronald Reagan UCLA Medical Center and Assistant Professor of Neurosurgery and Pediatrics at the David Geffen School of Medicine at UCLA, discusses hydrocephalus after hemispherectomy and other procedures at the 2017 Pediatric Epilepsy Surgery Conference and Family Reunion.
Revision Surgery After Failed Hemispherectomy: Difficult Disconnections
Some areas of the brain are difficult to disconnect. Dr. James Baumgartner, Surgical Director, Epilepsy, at the Florida Hospital for Children, discusses which brain conditions make it difficult to secure complete disconnection, how to determine if there are missed connections if seizures return after initial disconnective/resective surgery, the use of diffusion tensor imaging to map missed connections and its reliability, at the 2017 Pediatric Epilepsy Surgery Conference and Family Reunion.
Orthopedic Surgeries for Lower Extremity Hemiparesis
Hemiparesis can cause significant lower extremity musculoskeletal issues, often requiring surgery. This session by Dr. Raymond Woo, Medical Director of Pediatric Orthopedics at the Florida Hospital for Children from the 2017 Pediatric Epilepsy Surgery Conference and Family Reunion, addresses the various surgeries to correct hip subluxation, drop foot, and other issues.
Hand Function, Splinting, and Upper Extremity Therapies After Hemispherectomy
Kevin Pratt, OD, CST, discusses splinting and other interventions for upper extremity weakness after hemispherectomy at the 2016 Hemispherectomy Conference and Family Reunion.
Sodium Regulation, Early Puberty, Weight Gain And Other Endocrine Challenges After Hemispherectomy
Phil Zeitler, MD, PhD, Professor, Pediatrics-Endocrinology, Section Head – Endocrinology, Medical Director – Children’s Hospital Colorado Clinical & Translational Research Center, discusses central endocrine issues in some children with neurological challenges, including after hemispherectomy surgery and/or hydrocephalus. These challenges include central diabetes insipidus, early puberty, weight gain related to thyroid dysfunction, and other challenges.
Headaches and Fatigue After Hemispherectomy
Dr. Christopher Oakley, assistant professor of neurology at the Johns Hopkins Institute, discusses headaches and fatigue after hemispherectomy surgery at the 2015 Hemispherectomy Conference And Family Reunion.
Executive Functioning and Processing After Hemispherectomy
Dr. Cynthia Salorio, Ph.D., assistant professor of physical medicine and rehabilitation at the Johns Hopkins Institute, discusses executive functioning and processing after hemispheretomy at the 2015 Hemispherectomy Conference and Family Reunion.
Vision Challenges and Rehabilitation After Hemispherectomy
Robert W. Enzenauer, MD, MPH, MSS, MBA, Chief o Pediatric Opthalmology at Children’s Hospital Colorado and Lynn Hellerstein, OD, Hellerstein Resources for Creative Learning, discuss visual challenges after hemispherectomy at the 2016 Hemispherectomy Conference and Family Reunion.
Hearing and Listening After Hemispherectomy
Dr. Frank Musiek, PhD, CCC-A, and Director of the University of Arizona’s NeuroAudiology Lab discusses how hemispherectomy surgery affects the brain’s ability to process sounds and words at the 2016 Hemispherectomy Conference and Family Reunion.
Neuropsychological Assessments After Hemispherectomy
Michael Kirkwood, PhD, MA, Associate Clinical Professor, Physical Medicine & Rehabilitation, Director, CHCO Rehabilitation Psychology / Neuropsychology and Co-Director, CHCO Concussion Program, discusses the finer points of neuropsychological assessments after hemispherectomy, including comparisons to and limitations of school psycho-educational assessments at the 2016 Hemispherectomy Conference and Family Reunion.
Hemispherectomy and Similar Disconnection Surgeries
Dr. George Jallo discusses hemispherectomy and other disconnection techniques at the 2015 Hemispherectomy Conference and Family Reunion.
Infantile Spasms and Hemispherectomy Surgery
W. Donald Shields, M.D., Emeritus Professor of Neurology and Pediatrics, David Geffen School of Medicine at the University of California at Los Angeles, discusses infantile spasms, hemispherectomy, as well as the underlying etiologies that often require removing half the brain to stop catastrophic epilepsy. This segment also serves as an introduction to the professionals panel at the 2011 International Hemispherectomy Conference and Family Reunion sponsored by the Hemispherectomy Foundation and provides an excellent introduction to hemispherectomy surgery.
Intensive Therapy After Hemispherectomy
Teressa Reidy, OT, Kennedy Krieger Institute, discussed intensive therapy approaches after hemispherectomy at the 2015 Hemispherectomy Conference and Family Reunion.
Typical and Atypical Development of Brain Connectivity: The Case of Hemispherectomy
The brain’s neurons, connections, and lobes don’t work in isolation. Functions and information are processed by many different areas of the brain that are connected by axons (“white matter”) and other structures that form circuits of information exchange. When these circuits are interrupted, whether by seizures or by epilepsy surgery, issues with attention, social cognition, and learning can occur. Understanding how your child’s brain circuits have been interrupted will help you advocate for their educational success, as well as help you understand their behaviors and challenges. Here, Dr. Lucina Uddin, neuroscientist, discusses brain circuits at the 2017 Pediatric Epilepsy Surgery Conference and Family Reunion.
POWER POINT PRESENTATIONS
NeuroMuscular Electrical Stimulation for Facilitation
Lucinda Baker, Phd, presented this Power Point on possible applications of NMES for facilitation in central nervous system dysfunction following hemispherectomy at the 2014 Hemispherectomy Conference and Family Reunion.
The Role of EEG in the Diagnosis and Management of Epilepsy
This presentation by Stephen J. Falchek MD addresses what an EEG is and how it is used in the diagnosis and management of Epilepsy.
Joanna Couch presented on the topic of visual supports at the 2017 Pediatric Epilepsy Surgery Conference and Family Reunion. The presentation covers when, why, and how to use visual supports and some common mistakes made when using them.
Blind Rehabilitation Tips for Home, Services, and Resources
This presentation by Catherine Bacik given at the 2017 Pediatric Epilepsy Surgery Conference and Family Reunion provides tips that can be used in the rehabilitaion of a person with homonymous hemianospia due to surgery.
Assistive Communication Devices and Apps for the Nonverbal/Limited Verbal Child
Carrie Clark, a Speech-Language Pathologist, spoke on augmentative/alternative communication at the 2017 Pediatric Epilepsy Surgery Conference and Family Reunion.