Meeting other parents whose children have had epilepsy surgery is often the first thing parents want to do when their child is diagnosed with drug-resistant epilepsy. There are several ways to connect with other families:
Pediatric Epilepsy Surgery Support – A closed Facebook group created and moderated by parents.
The Hemispherectomy Foundation – An open Facebook group moderated by The Hemispherectomy Foundation.
Hemimegalencephaly Family Support Network – A closed Facebook group created and moderated by page administrators.
We host conferences where families can learn from experts and meet other families.
Email us at firstname.lastname@example.org and we will connect you with a family in your area with the same/similar diagnosis whose child has had epilepsy surgery.