There are several ways we can help you connect your patients’ parents with other parents whose children have had epilepsy surgery.
Email our team at firstname.lastname@example.org and we’ll get your family connected. At this time, we have families who speak English, Spanish, French, Dutch, Portuguese, Ukranian, Romanian, Farsi, Tagalog, Hindi, Tamil, and Malayalam.
Social Media and Websites
There are several websites and social media groups created by parents, for parents, that may be help your families, including:
Pediatric Epilepsy Surgery Support – a closed Facebook group for parents of children considering or who have had brain surgery to stop seizures.
Hemispherectomy Foundation – A non-profit foundation which provides emotional support, camp and other assistance grants to families impacted by hemispherectomy. Includes an open Facebook group for parents of children considering or who have had hemispherectomy. Administered by the Hemispherectomy Foundation. A Spanish-speaking page is available here.
Hemispherectomy France – an open Facebook group for French-speaking parents of children considering or who have had hemispherectomy administered by a parent.
Hemimegalencephaly Family Support Network: A network of families created by a parent to inform and support parents of children diagnosed with hemimegalencephaly. Includes website and closed, moderated Facebook group.
Lennox-Gastaut Syndrome Foundation: A non-profit organization dedicated to providing information about Lennox-Gastaut Syndrome while raising funds for research, services and support for individuals living with LGS and their families.