Children who had childhood hemispherectomy ages 11 to 17 are sought to participate in a two-week research program set in a camp-like environment to compare the effectiveness of robotics-assisted therapy v. a hybrid of robotics-assisted therapy and traditional therapy to improve hand, wrist, and ankle kinematics as well as overall gait and ambulation. Children will be randomly assigned to one of two treatment groups. Participants and their parents/guardians will not know which group they have been selected to participate in until the first day of the program.
The ideal participant is at least eleven years old, had their hemispherectomy at least one year ago, is seizure-free since surgery, is able to follow instructions and communicate verbally or with an assistive communication device, has minimal attention deficit challenges, walks with very little assistance, and has the stamina to participate in this 6-hr-per-day program. The lead investigator may contact the parent/guardian prior to selection to get more information or clarification on the child’s medical history, and may also request a video interview with the child. Investigators will choose the participants based on medical/rehabilitation suitability and age range. Because this is a day camp, investigators will try to assemble a group of similarly aged participants.
A co-payment of $500 is requested for each child; however, those who are unable to contribute may ask for a fee waiver. Inability to pay will not affect anyones ability to participate in this program.
Dates for the research program are:
Camp 1: Sunday July 12, 2015, to Saturday July 25, 2015 (expected days of travel are Sat July 11, Sunday July 26);
Camp 2: Sunday August 2, 2015, to Saturday August 15, 2015 (expected days of travel are Sat August 1, Sunday Aug 16).
The first Sunday of each camp period will include pre-therapy functional magnetic resonance imaging (fMRI). The last Saturday of each camp period will be post-therapy fMRI. Participants must be able to comply with verbal commands to move various body parts while in the MRI machine for approximately one hour, without sedation.
Travel and meals:
A travel stipend per participant pair (one adult/one child) in the amount of $250 will be provided as well as roundtrip transportation to and from the airport. Meals will be provided Monday through Friday of each camp week only.
One parent or legal guardian MUST accompany the child to this camp. Absolutely no exceptions. Housing will be provided offsite at the Housing of Medical Emergencies (HoME) facility in Downey, California. Only one adult and one child per room is allowed. Click here for more housing information.
Status: The study has been approved by the supervising institution. IRB #190.
Participation: Approximately 16 participants ages 11 – 17 are sought. To have your child considered for this research program, sign up here.
Grant award: Housing, meals, and a family travel stipend of $250 for each of 16 participants.
Term: One year. Participants may be asked to return after six months for assessments only.
This research program is part of an ongoing collaboration with The Brain Recovery Project, Rancho Los Amigos National Rehabilitation Center, and Rancho Research Institute.