Educating a child after epilepsy surgery often requires a multi-disciplinary approach. Some children may need only accommodations, or minor modifications to the curriculum, while others may require significant supports such as 1:1 aides and 1:4 academic instruction.
Our fact sheets, guides, videos, and informational links help you understand your student so you can help them succeed in school. They include:
Education After Hemispherectomy – An Introductory Guide – Rev. July 2017
Disconnection Syndrome: Disconnection syndrome, also known as split-brain syndrome, is reported in rare cases. Learn more about it here.
Disconnection Syndrome: Disconnection syndrome, also known as split-brain syndrome, is an outcome after corpus callosotomy with varying degrees of severity.
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The following guides, products, or information will help you understand the various challenges a child may have after epilepsy surgery.
Homonymous Hemianopsia Simulators – from Vision Rehabilitative Services, LLC. These inexpensive simulators will help the educational team understand the visual field cut after hemispherectomy, hemispherotomy, hemidecortication, occipital lobectomy, temporo-parietal-occipital disconnection, and any multi-lobar resection or disconnection which includes the occipital lobe.
Rummel Hemianopsia Buttons™ – These simple buttons remind others that your student is unable to see in their blind field. An inexpensive reminder for anyone working with a child after hemispherectomy, hemispherotomy, hemidecortication, occipital lobectomy, temporo-parietal-occipital disconnection, and any multi-lobar resection or disconnection which includes the occipital lobe.
Rummel Hemianopsia Guides™ – Reading guides that remind your student to read to the end of the line (for right hemianopsia) and where to begin at the next line (for left hemianopsia).
Seizure Action Plan – From the Epilepsy Foundation. It is important that educators understand that epilepsy surgery does not have a 100% success rate. Children may have a seizure at any time after epilepsy surgery. A good seizure action plan is critical for the team to know and understand.
Legal Rights of Children With Epilepsy In School and Child Care – An excellent overview of the legal rights of children with epilepsy in school and child care, including an in-depth discussion of the Individuals with Disabilities in Education Act and Individual Education Plans, the Rehabilitation Act and 504 Plans, and administration of rescue medication in various educational and child care settings.