WE HELP YOU NAVIGATE THE MAZE OF SPECIAL EDUCATION

Individual education plan (IEP) meetings can be complicated and challenging for parents and guardians of children after hemispherectomy. Our new program will offer assistance with IEP meetings by providing parents or guardians with a non-attorney advocate who understands how respective or disconnective epilepsy surgery may affect a child in the educational environment.

Are advocates trained?

All advocates must complete Special Education Advocate Training Project TM (SEAT) training provided by the Council of Parent and Attorney Advocates or have equivalent work experience. Additionally, all advocates are trained by The Brain Recovery Project to understand how the effects of respective and disconnective epilepsy surgery impact the child in the educational environment. 

How do I sign up to have an advocate help me?

Families who would like an advocate to help them with their child’s individual education plan meeting will be assisted on a first-come, first-served basis.

How much does an advocate cost?

The first ten hours of the advocate’s work for you are free to you. Thereafter, you may pay a fee of $75 per hour to continue to work with the advocate, or we will help you find another advocate to work with. 

My child is the first in our district to have this procedure. Can you work with individual members of the team to help him/her understand the effects of epilepsy surgery?

Advocates are also available to provide support to school personnel and parent training on the after effects of hemispherectomy, lobectomy, corpus callosotomy, and other disconnective surgeries which impact a child’s ability to access the curriculum and educational environment.

Do advocates attend IEP meetings in person?

Advocates attend meetings via telephone or video conference only.  

Will an advocate help me file for due process?

No. In the event an attorney is necessary to represent the child’s interests, The Brain Recovery Project can assist with making referrals to counsel in your area.

How quickly can an advocate help me?

Assistance from one of our advocates is available on a first-come, first-served basis.  We request at least two months lead time prior to the IEP meeting date.  This gives us time to review your child’s file and prepare for the meeting. We reserve the right to decline to assist you if we do not receive enough notice of the IEP meeting.

If you are interested in speaking with an advocate about your child’s education plan, please complete the following questionnaire. You will be contacted within a few days to discuss your child’s program with us:

Fill out my online form.

What should I do to prepare to meet with the advocate?

In order to allow us to fully prepare for your child’s IEP meeting, we strongly recommend that you upload your child’s current IEP plan, all recent assessments (whether performed by the school district or by a private provider), and and all relevant correspondence with the district to a Google Drive folder. It takes time to pull these documents together, so please do so as far ahead of time as possible. You will be asked to share this folder with us at a later date. 

If you do not have a full and complete copy of your child’s educational file, you may request a copy from your school district using this template.

Use your advocate’s time wisely! Prepare these documents ahead of time so that the advocate does not use your ten hours of free time on administrative tasks such as making photocopies and organizing your file.