Guides and Information 2018-05-17T20:16:13+00:00

Our downloadable pamphlets and guides are evidence-based knowledge translation summaries that help you inform your patient’s parents, guardians, and caregivers.

PARENT/CAREGIVER GUIDES

BRAIN SURGERY TO STOP INFANTILE SPASMS

This guide introduces your patient’s parents to the concept of stopping infantile spasms with brain surgery. Written by parents, for parents, it makes clear that infantile spasms can have catastrophic consequences if they are not stopped early.

THE RISKS OF DRUG RESISTANT SEIZURES IN CHILDHOOD

Drug resistant seizures can be catastrophic to development. This guide helps explain the serious implication of intractable epilepsy in childhood.

WHAT IS HEMIMEGALENCEPHALY?

Hemimegalencephaly is a rare condition, often requiring hemispherectomy. This guide helps parents understand this very rare condition.

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WHEN ARE SEIZURES CONSIDERED DRUG RESISTANT?

Drug resistant seizures are defined as failure of two appropriate and tolerated anti-epileptic drugs. This guide breaks down the International League Against Epilepsy’s definition of drug resistance.

EDUCATIONAL GUIDES

VISION AFTER HEMISHERECTOMY, TPO DISCONNECTION, AND OCCIPITAL LOBECTOMY

This guide summarizes the various visual impairments a child will have after hemispherectomy, TPO disconnection, and occipital lobectomy, and how they can affect a child’s daily living, functional mobility, and access to the educational curriculum in school.

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EDUCATION AFTER HEMISPHERECTOMY

This document provides educators and aligned professionals with an overview of the challenges a child after hemispherectomy will face in school.

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CORTICAL AUDITORY IMPAIRMENT AFTER HEMISPHERECTOMY

Hearing and listening after hemispherectomy can be a challenge. This guide helps your patient’s parents understand cortical auditory impairment after hemispherectomy.

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NEW FEBRUARY 2018

ASSISTIVE TECHNOLOGY ASSESSMENTS AFTER EPILEPSY SURGERY

After epilepsy surgery, children may have difficulties performing some activities of daily living on their own or even with assistance, and assistive technologies can minimize the effects of the child’s disabilities, making it easier for the child to accomplish various tasks.

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NEW FEBRUARY 2018

VISION EVALUATIONS AFTER EPILEPSY SURGERY

A complete annual evaluation from a neuro-ophthalmologist is beneficial to children after hemispherectomy, TPO disconnection, and occipital lobectomy. Early diagnosis, coping strategies, and patient rehabilitation are critical after these surgeries.

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NEW FEBRUARY 2018

STRATEGIES FOR CORTICAL AUDITORY IMPAIRMENT AFTER HEMISPHERECTOMY

There are many management options to address Central Auditory Processing Disorder. These can include therapeutic and environment interventions and compensatory strategies to help the child to be as successful as possible.

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HELPFUL EDUCATIONAL STRATEGIES FOR CHILDREN WITH HOMONYMOUS HEMIANOPSIA

A child with homonymous hemianopsia should learn as early as possible to advocate for themselves. This guide provides key strategies for one of the most important social, emotional, and educational skills we can teach, self advocacy.

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PARAPROFESSIONALS AND AIDES AFTER EPILEPSY SURGERY

Children after epilepsy surgery often require a 1:1 aide to help them navigate their school’s physical campus safely and sometimes to access the education curriculum. This brief info sheet describes how a dedicated aide can help a child after surgery.

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Rasmussen’s Encephalitis – coming soon

Cortical Dysplasia – coming soon

Stroke – coming soon

Hemispherectomy – coming soon

Brain Surgeries To Stop Seizures – coming soon

Pamphlets and guides will be available in English, Spanish, Korean, Mandarin, and other languages. Do you have any suggestions? Email us at info@brainrecoveryproject.org.

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