Guides and Information

Guides and Information 2017-11-27T21:16:29+00:00

Our downloadable pamphlets and guides help you inform your patient’s parents, guardians, and caregivers.

PARENT/CAREGIVER GUIDES

BRAIN SURGERY TO STOP INFANTILE SPASMS

This guide introduces your patient’s parents to the concept of stopping infantile spasms with brain surgery. Written by parents, for parents, it makes clear that infantile spasms can have catastrophic consequences if they are not stopped early.

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THE RISKS OF DRUG RESISTANT SEIZURES IN CHILDHOOD

Drug resistant seizures can be catastrophic to development. This guide helps explain the serious implication of intractable epilepsy in childhood.

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WHAT IS HEMIMEGALENCEPHALY?

Hemimegalencephaly is a rare condition, often requiring hemispherectomy. This guide helps parents understand this very rare condition.

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WHEN ARE SEIZURES CONSIDERED DRUG RESISTANT?

Drug resistant seizures are defined as failure of two appropriate and tolerated anti-epileptic drugs. This guide breaks down the International League Against Epilepsy’s definition of drug resistance.

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EDUCATIONAL GUIDES

EDUCATION AFTER HEMISPHERECTOMY

This document provides educators and aligned professionals with an overview of the challenges a child after hemispherectomy will face in school.

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CORTICAL AUDITORY IMPAIRMENT AFTER HEMISPHERECTOMY

Hearing and listening after hemispherectomy can be a challenge. This guide helps your patient’s parents understand cortical auditory impairment after hemispherectomy.

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Rasmussen’s Encephalitis – coming soon

Cortical Dysplasia – coming soon

Stroke – coming soon

Hemispherectomy – coming soon

Brain Surgeries To Stop Seizures – coming soon

Pamphlets and guides will be available in English, Spanish, Korean, Mandarin, and other languages. Do you have any suggestions? Email us at info@brainrecoveryproject.org.

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